A Guide to Mental Health & Emotional Wellbeing for People with MS

Multiple Sclerosis (MS) is a lifelong neurological condition that affects the central nervous system, leading to a wide range of physical symptoms. However, the impact of MS is not just physical—many people also experience mental health challenges, emotional distress, and fluctuating moods. Managing the psychological effects of MS is just as important as addressing its physical symptoms.
At the Samson Centre for MS, we recognise that emotional wellbeing is a key part of managing MS. Alongside physiotherapy and exercise programmes, the centre provides a supportive community where people with MS can connect, share experiences, and access emotional support.
This guide explores the emotional and mental health challenges associated with MS, strategies for building resilience, and where to find support, including the resources available at the Samson Centre.
The Psychological Impact of MS
Living with MS brings not only physical challenges but also emotional and mental health difficulties. These are often due to:
- The uncertainty of the condition – MS is unpredictable, and symptoms can change over time.
- The impact on independence and daily life – Some individuals find that their ability to work, socialise, or carry out daily activities is affected.
- The neurological changes caused by MS – MS can affect the brain’s ability to regulate emotions, leading to mood swings or depression.
- The burden of ongoing medical treatment – Regular hospital visits, medications, and therapies can feel overwhelming.
Studies show that people with MS are more likely to experience depression and anxiety than the general population. Without the right support, these feelings can become overwhelming. This is why having a strong support network, such as the Samson Centre’s community, can play a vital role in maintaining mental wellbeing.
Common Emotional Challenges in MS
1. Depression and Low Mood
Many people with MS experience persistent feelings of sadness, hopelessness, or a lack of motivation. This can be triggered by:
- A diagnosis of MS and coming to terms with a long-term condition.
- Increased disability or worsening symptoms.
- Social isolation or withdrawal from friends and family.
- Fatigue, which can make daily life feel overwhelming.
At the Samson Centre, our community provides a safe and supportive space where members can talk openly about their feelings, helping to combat isolation and loneliness.
2. Anxiety and Worry
The unpredictability of MS can create constant worry about the future, including:
- Fear of disease progression.
- Concerns about employment, financial stability, or family life.
- Uncertainty about treatment options and side effects.
Attending regular activities at the Samson Centre, whether for physiotherapy, exercise, or social support, can help reduce anxiety by providing a sense of structure, routine, and connection.
3. Stress and MS Relapses
Stress can worsen MS symptoms and, in some cases, trigger relapses. Common stress-related symptoms include:
- Increased fatigue.
- Muscle tightness or spasms.
- Difficulty concentrating.
- Sleep disturbances.
Relaxation techniques and gentle exercise, both available at the Samson Centre, can help reduce stress and improve wellbeing. Many members find that physiotherapy sessions, mindfulness activities, or simply chatting with others in similar situations can help ease tension and promote relaxation.
Building Emotional Resilience with MS
Although MS presents emotional and mental health challenges, there are effective strategies to build resilience and maintain emotional wellbeing.
1. Acknowledge Your Feelings
It is normal to feel frustrated, sad, or anxious about MS. Rather than ignoring these emotions, acknowledge them and talk about them.
The Samson Centre’s community provides a space to connect with others who understand these challenges, reducing the emotional burden of MS.
2. Stay Connected
Isolation can worsen depression and anxiety. Try to:
- Maintain social connections, even if they need to be adapted (e.g., online meetups, phone calls).
- Join MS support groups – speaking with others who understand MS can be reassuring.
- Engage with local MS centres like the Samson Centre, where you can access physiotherapy, exercise, and peer support.
3. Prioritise Rest and Sleep
Fatigue is a major contributor to low mood and emotional distress. To improve sleep quality:
- Stick to a regular sleep routine.
- Reduce screen time before bed.
- Practice relaxation techniques, such as breathing exercises or gentle yoga.
The Samson Centre offers tailored exercise programmes designed to improve energy levels and promote better sleep.
4. Stay Active
Exercise is one of the best ways to boost mental wellbeing, as it helps:
- Improve mood-enhancing endorphins.
- Reduce stress and anxiety.
- Increase energy levels.
At the Samson Centre, physiotherapy and supervised exercise sessions are available to help people with MS stay active in a safe, supportive environment.
5. Seek Professional Help When Needed
If feelings of anxiety or depression become overwhelming, seeking professional support is essential. Options include:
- Counselling or talking therapies – Cognitive Behavioural Therapy (CBT) can help reframe negative thoughts.
- Medication – Antidepressants or anti-anxiety medications may be recommended.
- Neurological or psychiatric support – Some MS symptoms, such as mood swings or emotional dysregulation, may require specialist intervention.
The Samson Centre team can help signpost members to specialist mental health support when needed.
Support Services for Mental Wellbeing with MS
Living with MS does not mean facing emotional challenges alone. Various organisations and services offer mental health support, therapy, and self-help resources.
1. MS-Specific Support
- Samson Centre for MS – Providing physiotherapy, exercise, and emotional support for people with MS.
🔗 www.samsoncentre.org.uk
- MS Society UK – Offers information, local support groups, and emotional wellbeing resources.
🔗 www.mssociety.org.uk
- MS Trust – Provides expert advice on managing MS symptoms, including mental health.
🔗 www.mstrust.org.uk
2. Mental Health Support Services
- Mind – A leading mental health charity offering free advice, support, and crisis helplines.
🔗 www.mind.org.uk
- Samaritans – A 24/7 helpline for anyone struggling with emotional distress. Call 116 123 for free.
🔗 www.samaritans.org
- CALM (Campaign Against Living Miserably) – Specialises in suicide prevention and mental health support.
🔗 www.thecalmzone.net
Conclusion
Mental health and emotional resilience are just as important as physical wellbeing when living with MS. While challenges such as depression, anxiety, and stress are common, there are many strategies and support services available to help manage emotional wellbeing.
By staying connected, engaging in relaxation techniques, maintaining physical activity, and seeking professional help when needed, people with MS can improve their emotional resilience and overall quality of life.
For those looking for additional physical and emotional support, the Samson Centre provides a welcoming community, structured exercise programmes, and access to wellbeing resources.
If you or someone you know is struggling with mental health, do not hesitate to reach out to one of the support services listed above. Help is available, and no one has to face MS alone.