By Linda Broughton Member
Vince received his Multiple Sclerosis diagnosis at the beginning of 2007. Sixteen and a half years later here is life as we know it.
The Samson Centre is in the middle of our universe. It sounds a bit sad, but it is our lifeline. We have no family or friends in this area, but we stayed here to be close to the centre because of the support it brings to both of us. Foremost for Vince is the physiotherapy, that he receives from the most amazing team of Physios who are always friendly and professional and seem to constantly strive to improve their knowledge of methods and equipment to assist the MSers. In fact, everyone at The Samson is lovely from the permanent staff to the volunteers and even the MSers and carers who attend the centre. For me, and I know other people who attend the centre feel the same way, it is the camaraderie. Sitting and sharing stories and experiences with others in the same boat. Often you feel better knowing that you are not the only one in your situation or the way you feel is normal under the circumstances. You are among your own people and those who care for them. We are part of a community who… “get it!”
Also, it seems obvious, but the Samson Centre is a destination that is truly accessible and has all the appropriate facilities. Together with free tea, coffee, biscuits, even Wi-Fi and plenty of parking. Perfect!
Outside of the centre Vince keeps himself busy Batecing (a motorized front wheel that attaches to his wheelchair). This gives him the independence and self confidence to go out on his own. He also enjoys an on-line presence with Facebook and other discussion platforms and communities. He like to immerse himself in on-line game playing by creating extensive fantasy worlds and interacts with other gamers all over the world. This helps keep his mind active and exercised and helps him feel part of an extensive world community. The games translate instantly so communication with other gamers appears seamless. How clever!
Vince always worried that he would never get to walk his daughter down the aisle, however, last year she got married and in March of this year we welcomed a granddaughter, Isabella West. This made him incredibly happy! Can this make up for what he has lost? Vince’s interests and hobbies were always sporty and active. He still misses driving immensely. He loved to ride his motorbike, enjoyed scuba diving, snow and water skiing. I know it is a daily challenge for him.
This was Vince on his way to St. Tropez in the days when the French did not enforce the helmet law very rigorously.
So, ME, the wife…the carer! What do I get from the Samson Centre? I could not survive without the gym. It took me some years before I actually wanted to go in there. In the beginning it was a chore, and it did not take much for me to sit and chat and laugh with others while drinking tea waiting for Vince. Now, they cannot keep me out. I love the gym and it keeps me fit, strong, and able to manage Vince’s care better. I also attend Maria’s Pilates class every Tuesday and this keeps me flexible. Getting out of bed in the morning is no longer a “pain in the bottom” …literally!
Every six weeks I lead a Carers Group at the Centre. We just talk and share whatever is bugging us or if we have a problem often the attendees have experience of a similar situation and offer advice or support. Everyone is always keen to help if they can or just be that understanding listener. Even if we do not know why, most of us leave feeling a bit better. So, definitely worth the time!
In the last year or so, I have rediscovered my arty side. I am painting again, and I am absolutely loving it. I am not sure I would have had the time to do this if I were still working. Who knows? I currently give my pictures as gifts to friends and family, but I have done a painting for Jackie for a donation to the Centre. People say they like them, so I can only assume I am not rubbish. Hey, it’s my therapy!
Anyway, this is us. We are still together making the most of a demanding situation. Supporting each other and receiving essential support from the Samson Centre, for which we are both exceedingly grateful.
Thank you, Samson Centre.